Cystic Fibrosis Awareness • Music • Metaverse

65 Roses in the Metaverse

A gentle doorway into a hard conversation — built with music, roses, and a virtual space where people can gather, listen, and feel less alone.

A whimsical Chiegoll figure in red glasses, surrounded by a sky and roses.

When something is difficult to say, the heart sometimes finds a softer language. 65 Roses in the Metaverse carries that spirit into a new world — one where awareness can be shared through sound, presence, and community. 65% of proceeds will go to the CF community.

The rose behind the name

The boy who heard roses

The journey is inspired by the well-known “65 Roses” story from the cystic fibrosis community. In 1965, a young boy heard the words “cystic fibrosis” and understood them as “65 Roses.” The phrase became a symbol of tenderness, courage, and hope.

That is the feeling Chiegoll carries forward: not to make cystic fibrosis small, but to make the first step toward awareness feel human. A song can open a door. A rose can start a conversation. A metaverse space can help people meet safely when distance, health, or circumstance makes gathering harder.

This website is for awareness and community connection, not medical advice.

A safe place to meet

A virtual garden for awareness

We created a space in the metaverse on the Decentraland Platform so people can meet up in a virtual world, interact safely, and share the message behind 65 Roses.

📍 Chiegoll's Barn Decentraland coordinates -149,12

Come as an avatar. Listen to the sound. Walk through the idea. Share the story with someone who may need a softer way into the conversation.

Visit Chiegoll's Barn

Birth of a Chiegoll

Listen to the Album

Stream or purchase the music and help carry the 65 Roses awareness message forward. 65% of proceeds will go to the CF community.

“A rose can say what a difficult word cannot. A song can carry that rose farther.”

Follow the journey

Chiegoll Social Links